Blog Home > June 2011 Archives

Three new faces at the Foundation office

The CdLS Foundation has recently gained three new members to the team. We would like to welcome our new communications coordinator, Francesca Scognamiglio, and our two summer interns, Ciara Duggan and Alicia Mangiasico. Francesca graduated from Ringling College of Art and Design in Sarasota, FL, with a BFA in Graphic Interactive Communications. After spending some time in working in retail, she is now the part time communications coordinator for the CdLS Foundation. Ciara, a junior...

Team CdLS Ambassadors Named for 2011 Marathons

Team CdLS ambassadors have been named for the marathons taking place in Chicago, IL, Baltimore, MD, and New York City, NY, this year. The ambassadors are individuals who have Cornelia de Lange Syndrome and act as representatives for Team CdLS in their specific locations. Breeze Davis, 7, is the ambassador for the Bank of America Chicago Marathon. Breeze is from Downers Grove, IL, and was diagnosed with CdLS at age three. She loves going to...

Cross-country motorcyle trek nearing the end

Ken Fouts is now on his sixteenth day of Adrian's Ride, a cross-country motorcycle ride to raise money for the CdLS foundation. The ride is in honor of his 17-year-old grandson, Adrian. Today, Day 16, Fouts is traveling through the mountains of Colorado on his way to Utah, and has had quite a journey so far. He has traveled through more than 18 states and is just hoping for good weather to guide the rest...


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