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National CdLS Awareness Day

What is National CdLS Awareness Day? National CdLS Awareness Day is observed the second Saturday of May each year in order to shed light on this often misdiagnosed, little-known genetic syndrome. Since CdLS is unfamiliar to most people, including professionals in the medical community, Awareness Day--celebrated since 1989--is an opportunity to educate all segments of the population about the syndrome. Each year, parents, volunteers and others request official Awareness Day proclamations from governors and local leaders;...

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de Lange Society - 2013 induction

People gathered in Avon, CT from all around the country. Some are teachers, others are doctors. Some work in business, others work from their homes. People from various locales and time zones came together to honor their friends and colleagues who care so deeply about those with CdLS. These individuals were honored at the 2013 de Lange Society Recognition luncheon on April 6. For 20 years or more, the inductees have shown dedication and...

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