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To the Me of Ten Years Ago

By: Phoebe Holmes - Herding Cats Blog"You...yes you, holding that sweet baby girl in the plaid dress.  Let's chat.You don't know it yet, but that sweet baby girl has a secret.  One that will slowly and not completely reveal itself over the next few years.It's going to break your heart.  Repeatedly.But I promise you, it will be okay.No.  Really.Sure, you'll need therapy.  And you'll get a bottle of Prozac with that therapy.  It'll help.  It...

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Share Your Experience in Advocacy

"Genetic Alliance is partnering with Parent to Parent USA (P2P) and Family Voices (FV) to collect resources that will support individuals who wish to act as advocates on behalf of themselves, their families, or others living with the same condition. The tools will be part of an accessible online toolkit, with advocacy resources grouped by topic area.   They would like to include a personal story that demonstrates the importance of advocacy from an individual,...

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Countdown to Awareness Day - Day 2

We love hearing about families' stories and travels, especially when CdLS can unite people from around the world. Read about one U.S. family's journey to New Zealand to meet another CdLS family! NewZealand_CdLSFamilyTrip.pdf...

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