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Your Voices: Kayla's Story

Days after Kayla was born, our world came crashing down. Born at 28 weeks and in congestive heart failure and respiratory failure, Kayla was not expected to live through the day. She was suffering severe brain damage and had so many medical problems that we didn't know where to start. The Neonatal Intensive Care Unit could do no more for her. That day, a geneticist diagnosed her with Cornelia de Lange Syndrome. It was the...

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