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2015 de Lange Society Inductee - Phyllis Musumeci

Phyllis Musumeci (pictured with her son and husband) lives in Viera, FL, and has been involved with the CdLS Foundation for more than 20 years. Her son Christian, 23, has CdLS. When Phyllis first began volunteering for the Foundation, it was because of those who reached out to her first. She officially became a Regional Coordinator in 2002, after raising awareness and supporting for the CdLS Foundation and families in her region for many years before...

International CdLS Conference Recap

By Tonie Kline, CdLS Foundation Medical DirectorThe international CdLS meeting had several parts. A scientific symposium was held the first day at the University of Lisbon, coordinated by Rarissimas, the private facility for rare diseases, run by Paula Costa, the director of CdLS Portugal. It covered both clinical and research aspects of CdLS and cohesion, as well as general topics related to individuals with neurodevelopmental disabilities. Members of the Scientific Advisory Council (SAC) and the...

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