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UK research on Cornelia de Lange Syndrome

The Cerebra Centre for Neurodevelopmental Disorders is organized through the School of Psychology at the University of Birmingham. Their work focuses on difficulties experienced by children and adults who have intellectual disabilities, autism spectrum disorders and genetic syndromes. Specifically, those that are associated with developmental delays. Cornelia de Lange Syndrome (CdLS) is one of the six conditions studied.Ms. Laura Groves, Dr. Caroline Richards and Prof. Chris Oliver recently published an anxiety guide for people...

Meet Dane: Team CdLS Ambassador for Chicago

Dane, proud son of Team CdLS Chicago Marathon runner Dominick Curalli, is three and a half years old.  The adventurous toddler was diagnosed with CdLS at just 3 weeks old.  Dane was born with intense reflux and poor swallowing musculature, which lead to a stay in the hospital for about 4 months until he was able to have surgery for a feeding tube and reflux.  He has hearing loss, sleep apnea and is delayed in...

Wagner raises funds, awareness for CdLS

Photo by Ioanna Raptis/SeacoastonlinePeter Wagner departs Maine for Illinois this weekend to support the Cornelia de Lange Syndrome (CdLS) Foundation in the Chicago Marathon. Wagner has set a goal of $20,000 for his third race on behalf of the Foundation, and is already halfway there.Wagner's daughter, Molly, 28, has CdLS and lives with her parents in Cape Neddick, Maine. She attended the public school system until she was 19, but physical difficulties from the Syndrome...


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