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Recent Stories From CdLS in the News

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Volunteer receives award for dedication to service, CdLS

The Mercer County Professional Counselors Association (MCPCA) recently recognized local high school seniors for their community service efforts and academic achievements. The 15 students were hosted at the 22nd annual scholarship breakfast reception at Mercer County Community College on June 1. One of the recipients was CdLS Foundation volunteer Riley Smith. Riley is the granddaughter of Kathy and Gene Van Buren, whose daughter, Jindi, had CdLS and passed away in 2003. The Van Buren family...

Foundation's first medical director honored with lifetime achievement award

Laird G. Jackson, MD, FFACMG, was honored with the 2017 American College of Medical Genetics and Genomics (ACMG) Foundation David L. Rimoin Lifetime Achievement Award.Dr. Jackson became involved with CdLS from 1962 to the present, and even mentored current CdLS Foundation Medical Director Tonie Kline, M.D. He currently teaches obstetrics, gynecology, and medical genetics at Drexel University College of Medicine.The David L. Rimoin Lifetime Achievement Award recognizes individuals who have demonstrated the personal characteristics of...

Awareness plans for 2015: It's going to be big

We have a new year's resolution for 2015: raise awareness on a national scale. We want to be the topic of discussion on national news shows, such as "The Today Show," or "Ellen." Our focus is not only to raise awareness of CdLS, but also to highlight the unwavering efforts of parents and caregivers of individuals with special needs. With your help, we believe this is possible. We want you all to get involved, by submitting your...

"For the Love of the Story"

Enjoy this wonderful story from Dena, mother to Benjamin who has CdLS."Dena is a mother, story teller, book seller, and community treasure. She has taken her passion for teaching and community-building and created Stories by the Sea; workshops to assist young writers in discovering, developing, and celebrating each one's unique voice and igniting the spark to tell their own stories." - PechaKucha, 20x20 story....

Continue reading about "For the Love of the Story" .

CdLS Foundation Achieves Highest Rating For Third Consecutive Year

The Cornelia de Lange Syndrome (CdLS) Foundation achieved its third, consecutive 4-star rating for sound fiscal management and commitment to accountability and transparency from Charity Navigator, the country's largest and most-utilized independent evaluator of charities. "We're here to serve those with CdLS and their families, nationwide. Equally, we strive to remain a fiscally sound organization," said Marie Concklin-Malloy, CdLS Foundation executive director. "It's great to see our efforts recognized by Charity Navigator, so that those we...


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