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Recent Stories From CdLS in the News

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Awareness plans for 2015: It's going to be big

We have a new year's resolution for 2015: raise awareness on a national scale. We want to be the topic of discussion on national news shows, such as "The Today Show," or "Ellen." Our focus is not only to raise awareness of CdLS, but also to highlight the unwavering efforts of parents and caregivers of individuals with special needs. With your help, we believe this is possible. We want you all to get involved, by submitting your...

"For the Love of the Story"

Enjoy this wonderful story from Dena, mother to Benjamin who has CdLS."Dena is a mother, story teller, book seller, and community treasure. She has taken her passion for teaching and community-building and created Stories by the Sea; workshops to assist young writers in discovering, developing, and celebrating each one's unique voice and igniting the spark to tell their own stories." - PechaKucha, 20x20 story....

Continue reading about "For the Love of the Story" .

CdLS Foundation Achieves Highest Rating For Third Consecutive Year

The Cornelia de Lange Syndrome (CdLS) Foundation achieved its third, consecutive 4-star rating for sound fiscal management and commitment to accountability and transparency from Charity Navigator, the country's largest and most-utilized independent evaluator of charities. "We're here to serve those with CdLS and their families, nationwide. Equally, we strive to remain a fiscally sound organization," said Marie Concklin-Malloy, CdLS Foundation executive director. "It's great to see our efforts recognized by Charity Navigator, so that those we...


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