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All Love for the CdLS Foundation

On Saturday, December 3, crowds lined up at the starting line of the annual One Love, One Heart 5K in Decatur, GA. Runners donned fuzzy hats and long sleeves in the chilly start to winter in honor of the CdLS Foundation. After a television news program mention, spirits were extra high for the annual race. Jim and Jen Pomfret originally started One Love, One Heart in honor of their daughter Maya, now 13 years old,...

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One Cousin's Mission to Raise Awareness Sparks Creativity

In the suburbs of Philadelphia, 9-year-old Kevin Doebley took a local contest and turned it into an awareness campaign in honor of his cousin. The fourth grader participates in a skateboarding program. Mentor Sean Khathavong is very interested in not only teaching the kids to skate, but to be good citizens as well. This fall, he had the children in his training group voluntarily participate in a skateboarding design contest. Each board was raffled off in store...

Wagner raises funds, awareness for CdLS

Photo by Ioanna Raptis/SeacoastonlinePeter Wagner departs Maine for Illinois this weekend to support the Cornelia de Lange Syndrome (CdLS) Foundation in the Chicago Marathon. Wagner has set a goal of $20,000 for his third race on behalf of the Foundation, and is already halfway there.Wagner's daughter, Molly, 28, has CdLS and lives with her parents in Cape Neddick, Maine. She attended the public school system until she was 19, but physical difficulties from the Syndrome...

Your Voices: Braxton's (Fundraising) Story

Each year where we live, we have an annual Fall Festival. At the end of the day, a demolition derby takes place. We live in a very small town and this car was donated to help raise money for Braxton to be able to go to the CdLS National Family Conference. People were able to buy raffle tickets for a chance to drive the car in the derby. We didn't make much money on...

Your Voices: The Borgia's Story

The moment you find out you're having your first child, the overwhelming excitement growsbecause you're that much closer to the life you had envisioned for your family. Fast forward 34 weeks and you're in the delivery room having an urgent cesarean section and your newborn is swept off to the NICU. This was only the beginning of how our story began.Luca is a name derived from the word "light." When seeing his pictures, I knew...

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Spend #GivingTuesday with the CdLS Foundation

This year, on Tuesday, December 1, 2015, the CdLS Foundation is participating in #GivingTuesday, a global day dedicated to giving. Last year, more than 27,000 organizations in 68 countries came together to celebrate #GivingTuesday. Since its founding in 2012, #GivingTuesday has inspired giving around the world, resulting in greater donations, volunteer hours, and activities that bring about real change in communities. We invite you to join the movement and to help get out and give this...

CdLS Foundation to host pizza fundraiser in NH

    Join the CdLS Foundation on August 10th at The Community Oven, a local pizza restaurant in Hampton, NH, hosted by our Communications Coordinator Brenda Shepard. A percentage of all food sales will be donated to the CdLS Foundation, so come hungry and tell your friends!      Brenda is thrilled to be taking part in such a rewarding fundraiser. She said, "I'm so excited to bring awareness of CdLS and the Foundation in...

They're not just T-Shirts

You may have seen our recent CdLS T-shirt campaign buzzing around Facebook. Maybe you stumbled across our banner on the homepage of our Web site. Either way, you may have found yourself purchasing a T-shirt on a Web site called Booster.com, and we think that's awesome.  The coolest part about these shirts is that they're not just T-shirts...they're a means to a much greater end. Each shirt will come across the eyes of, hundreds of...

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The Pentathlon Guys

"For the past 14 years, a great group of guys have been getting together for what many of us classify as one of the best days of the year. We wake up nice and early and make our way to Hingham, MA for "The Pentathlon," where 32 grown men, split into two-man teams, play wiffle ball, horseshoes, darts, ping pong, and 8-ball. We have a blast and we have plenty of hot dogs, burgers, beer,...

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International Day of Charity - Preparing for #GivingTuesday

Today, at the United Nations Headquarters in New York, and around the globe, there is a collective celebration of the first International Day of Charity. As #GivingTuesday goes global in its second year, this day will help set the stage and raise awareness around the world about the importance of philanthropy and giving.   The CdLS Foundation will be participating in #GivingTuesday for the second year in a row. We believe that every person, of...


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